Mar Post – Hyvää kevättä!

         March (Maaliskuu) 2024

Alzheimer’s 101 – Stages of Alzheimer’s

“Alzheimer’s has taught me the importance of living in the present moment and cherishing the time we have with our loved ones.” – Nancy Reagan

Did you know that Ronald Reagan, the 40th President of the United States, passed away in 2004 after a 10 year battle with Alzheimer’s? After Reagan’s diagnosis, his wife, Nancy, was very involved in Alzheimer’s awareness and advocacy. Nancy often talked about the “long goodbye” and how Alzheimer’s progression is “hard on the person going through it, and it’s hard on the family”.

What exactly is the long goodbye? The long goodbye represents the days, weeks, months, and years where an individual with Alzheimer’s and their family, friends, and caregivers anticipate what’s to come. Below are five stages of Alzheimer’s disease that contribute to the long goodbye… please keep in mind that the timing and progression of these stages can vary from person to person.

Five Stages of Typical Alzheimer’s Progression

  • Preclinical Stage: Alzheimer’s begins long before symptoms appear. In this stage, individuals may not show any signs of cognitive impairment, but brain changes can be detected through tests.
  • Mild Cognitive Impairment (MCI): This stage involves mild changes in memory and thinking abilities that are noticeable to the individual and possibly others; daily functioning, however, is usually not significantly affected.
  • Early-state Alzheimer’s disease: Symptoms become more pronounced, including memory lapses, difficulty finding words, challenges with problem-solving, and decreased concentration. Individuals can still function independently with some assistance.
  • Middle-state Alzheimer’s disease: Cognitive decline worsens, and individuals may experience increased confusion, difficulty with communication, personality changes, and trouble with activities of daily living such as dressing and bathing. Assistance with daily tasks becomes necessary.
  • Late-stage Alzheimer’s disease: In the final stage, individuals lose the ability to communicate coherently, recognize loved ones, and care for themselves. They require full-time assistance with all activities of daily living and are at increased risk for infections and other complications.

Knowing what’s to come as this disease progresses definitely creates a level of anxiety, but my family and I are doing our best to focus on the present moment. Nancy Reagan was also quoted saying “despite the hardships, there are moments of clarity and joy. It’s important to cherish those moments and hold onto them tightly.” There is nothing more true than this sentiment. A couple of months ago, I was out for a run after work and my mom called mid-run. I answered and told her I was running; she was concerned since it was dark(ish) out and told me to call her when I got home. When I got home, I showered, made dinner, and naturally, I forgot to call my mom. About an hour after I got home, my mom called and said “I just wanted to make sure you made it home okay.” I was so caught off guard and immediately teared up… it was a “concerned mom” moment that I hadn’t experienced in awhile because of Alzheimer’s.

Appreciating these moments of clarity and cherishing experiences with our mom – the holidays, the sporting events, the daily post-it notes, the shopping trips, the lunches – is what our Miles for Memories Initiative is all about. And by sharing our experience with you all, it’s our goal to raise awareness and funds for Alzheimer’s so someday we can live in a world without Alzheimer’s disease.

Next month, I’ll talk about the Alzheimer’s Association and highlight some of the great work they’re doing.

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Next Up: Ask a Finn. This month, you’ll hear from my three nephews and niece and hear what brings them happiness & why they’re proud to be Finnish.

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Raffle Winner – WooSox Tickets

(this month’s raffle videos are slightly chaotic – there are two videos, one for each raffle)

April Raffle

Baseball season is officially here… so this month we’re raffling off tickets to a Boston Red Sox Game!

A $10 donation to the Alzheimer’s Association will get you into this month’s raffle. This month’s winner will win two tickets to the Thursday May 16th game at Fenway – Sox vs Rays. #LetsGoRedSox

What’s better than donating to a good cause & watching some baseball?

Thank you for your generosity! #EndALZ & #GoSox!

To enter the raffle, please follow the steps below:

  • Follow the link to our Miles for Memories Team page: ALZ Fundraising Page
  • Click the ‘Donate to the Team’ link
  • Under ‘Team Gifts’, click ‘Donate to the Team’
  • A $10 donation will result in 1 raffle entry. Additional $10 increments will result in additional raffle entries (example: $50 donation = 5 entries to the current month raffle). Prior month entries do not carry over into this month’s raffle.
  • Under the ‘Donor Recognition’ section, type “Name – Apr Raffle” .
  • The deadline to enter this month’s raffle will be Friday April 26. The raffle winner will be announced in the month-end April blog post.
  • Good Luck!! And Gooooo Red Sox!

Thank you for your support! See you next month!