Final Post – KIITOS!

        

Alzheimer’s 101 – Emotional Well-Being for those living with Alzheimer’s

“Don’t wait for perfect moments – make the moments perfect by focusing on connection, laughter, and love.” – The Alzheimer’s Association

As you are all aware, as Alzheimer’s progresses, the individual living with Alzheimer’s gradually loses the ability to recall recent events, recognize loved ones, and perform basic daily tasks. While memories fade for the person with Alzheimer’s, the ability to experience emotions like joy, sadness, love, and fear often remain intact. This is because the brain regions responsible for emotional processing (amygdala) are affected later in the progression of the disease.

I recently came across an old, 2014 article titled: “Alzheimer’s patients can still feel the emotion long after the memories have vanished”. The article talks about research performed by students at the University of Iowa and states that people with ALZ can experience and hold onto emotions, such as happiness or sadness, even after they have forgotten the events that triggered these feelings. In the study, ALZ patients watched happy and sad film clips, and while many patients couldn’t recall the content of the films shortly after they watched them, they continued to feel the associated emotions for an extended period of time.

This study highlights that, despite memory impairments, the emotional lives of those living with ALZ remain active. As a result, it’s important for caregivers to focus on creating positive experiences for the person living with ALZ – these actions have a lasting emotional impact on the patient’s well-being.

I have actually seen this first-hand with my mom and my youngest nephew, Lon. Lon is incredibly caring and when he’s with his grandma, he’s always holding her hand, talking with her, or snuggling with her on the couch. Multiple times, when Lon is not around, my mom will randomly say “Lon is just the sweetest”. His patience and love towards my mom is absolutely leaving a lasting and positive impact towards my mom’s emotional well-being.

My family and I will continue to learn about Alzheimer’s disease, but over the past 1.5 years, we have learned a few things that we want to share as we close out this Miles for Memories blog. It’s important to note that this is not medical advice, but rather personal opinions and experiences we have went through as we navigate Alzheimer’s with our mom.

  • Try to create projects they can accomplish. This will provide them with a feeling of accomplishment.
  • Make a list of what is happening that day, which includes the date and the day of the week. Do the list every single day.
  • Telling someone with ALZ that a memory or statement is wrong or inaccurate can cause unnecessary stress and anxiety for the person with ALZ. Let them tell the story, smile, nod, and encourage. While it may be a hard adjustment for you, the person with ALZ believes it to be true and contradicting that can cause stress and anxiety.
  • For ALZ caregivers or family members, find a support system and talk about what you’re going through. Watching someone you love physically be there, but mentally be somewhere else is a treacherous feeling, but having a safe place to talk about the bad days is so important for your own mental well-being.
  • Support the primary caregiver. While he/she may not be living with Alzheimer’s, his or her life has changed with this diagnosis. It’s important that they stay involved in activities and stay healthy.
  • When stress, anxiety or irritability emerge for the person living with Alzheimer’s, try to be a calming presence for that person. This is sometimes easier said than done, but can help improve the emotional well-being for the person with ALZ.

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Next Up: Ask a Finn.

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Final Raffle Winner – Patriots Tickets!

Thank you for all of the donations for our final raffle at the end of the summer! We had 90 raffle entries, which means we raised $900 for the Alzheimer’s Association with our final raffle. THANK YOU everyone for your support.

Congratulations to our winners – Emily and Dalton. Here is a video of the raffle winner, which was recorded live from the Helsinki Marathon start line:

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Throughout 2024, we fundraised $5K+, which will be fully matched by Point 32 Health, resulting in $10K+ donated to the Alzheimer’s Association . THANK YOU to all of those who donated raffle prizes and to all of those who participated in the raffles & donated to the Alzheimer’s Association. The hope is that these funds help lead to a cure so some day we live in a world without Alzheimer’s.

As we enter 2025, I’d ask you to keep an eye out for ways to get involved with or donate to the Alzheimer’s Association. Some opportunities include:

  • Walk to End ALZ: Held annually in more than 600 communities nationwide, Walk to End Alzheimer’s is the world’s largest event to raise awareness and funds for Alzheimer’s care, support and research.
  • Shop at Marshalls in March: You heard me right, shopping lovers. Since 2013, Marshalls has joined the Alzheimer’s Association in the fight to end Alzheimer’s disease. In 2024, shoppers who visited Marshalls stores nationwide March 10-23 had the opportunity to donate to the Association at checkout. If willing and interested, head to a Marshalls during these dates in 2025 and support ALZ!
  • Raise awareness about Alzheimer’s disease: As of 2024, 6.9 million Americans aged 65 and older are living with Alzheimer’s disease. This number is projected to nearly double to 12.7 million by 2050, barring medical breakthroughs. Talk about Alzheimer’s to increase awareness and donations to help us find a cure!

“The first survivor of Alzheimer’s is out there, but we won’t get there without you.” – The Alzheimer’s Association

KIITOS!